Do you ever think that maybe a diagnosis you received may have come back to bite you?

  • locuester@lemmy.zip
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    2 days ago

    The article specifically states that the reason for getting this info is to link with other datasets to look for causes for the increase in autism cases.

    “Linking CMS claims data with a secure real-world NIH data platform, fully compliant with privacy and security laws, will unlock landmark research into the complex factors that drive autism and chronic disease — ultimately delivering superior health outcomes to the Americans we serve,” he said.

    It makes no mention of farms for neurodivergent people. That’s some nonsense.

      • locuester@lemmy.zip
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        1 day ago

        Where do yall come up with this stuff, and do you actually believe it? He’s attempting to find the CAUSE of autism by joining datasets. Any mention of CURE would be in the context of curing society of the problems causing it. That’s all.

        I swear yall are either master misinfo spreaders or so blind across party lines that you don’t use your brains or something.

        • Spider Jerusalem@lemmy.ml
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          24 hours ago

          Autism and ADHD are naturally occuring neurotypes. It’s like trying to pray the gay away, and they know it. Consider this and the context in which it’s coming up - immigration, gay/trans fearmongering, a sudden and completely wrong approach to “curing” autism. This guy isn’t talking to the best and brightest in the field for a reason. History may not repeat, but it rhymes. There was a famous book burning. It was LGBTQ+ research/materials. Look into who Asperger actually was. They’re coming after queer and disabled people first.

          • locuester@lemmy.zip
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            22 hours ago

            It’s coming up in the context of believing that autism is caused by vaccines. It’s not, they’ll find it’s not, and we will move on.

            Your conspiracy theories are baseless and wild.

            • Spider Jerusalem@lemmy.ml
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              21 hours ago

              We already know that autism isn’t caused by vaccines, and if anything, the reverse is true. Yet we have a guy with zero medical background peddling this and antivaxxer nonsense at the top of HHS. If you still can’t see a connection between stuff like this and social darwinism/eugenics, you can start by looking at someone he wants working on this. He worked with his father, and they experimented on autistic children. His father lost his medical license over it.

              https://www.nbcnews.com/health/health-news/hhs-taps-anti-vaccine-activist-look-debunked-links-autism-vaccines-sou-rcna198214

              See the following about how his father lost his license in Maryland. This also happened in other states.

              https://centerforinquiry.s3.amazonaws.com/wp-content/uploads/sites/33/2021/04/22172014/alj_2012.pdf

              Here’s a link - on Fox of all places - about RFK and “wellness farms” for various things, including the ADHD stuff you had trouble finding. “RFK ADHD work camps” does the trick.

              https://www.foxnews.com/politics/how-rfk-jr-wants-help-treat-addiction-wellness-farms

              When some rich guy comes outta nowhere and tell you that vaccines are bad, and folks with addictions, mental disorders, or happen to be a bit different from most just need to work on a farm for a while, your first thought shouldn’t be “wow, he’s really trying to help people.” If you’re still stanning this jackass after all of the above, I don’t know how else to help you, but I definitely know you haven’t worked very hard on answering your own questions above. Maybe a farm is hiring, IDK, but I’m done here.

              • locuester@lemmy.zip
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                13 hours ago

                Oh I hear ya on the whole dad medical stuff and the sketchy screwed up stuff going on there.

                But you lost me when you jump from rehab (on farms) for addicts and adhd to farms for neurodivergents.

                or happen to be a bit different from most just need to work on a farm for a while

                This is where a leap happens that I’m not following and I believe is baseless, but I’m trying to uncover that.

                If it’s simply based on his desire to try that treatment for some conditions and assuming he will suggest it for this one, I personally don’t think that’s a fair leap, but respect your desire to think it is. If there is more to back up this theory, I’d like to hear it.

      • locuester@lemmy.zip
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        1 day ago

        That has nothing to do with autism. He’s never even insinuated that neurodivergent people need nature and “farming” to recover.

        Interesting opinion in the article though. I’m pretty interested in his full idea/plan with mental health treatment. I recovered from a lifetime battle with alcohol at a men’s spiritual recovery center which operates on similar principles. So I have a unique view into that.

        Again tho, completely unrelated to his investigation into the causes of autism. Why are you conflating the two things?

        • Timecircleline@sh.itjust.works
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          1 day ago

          I wasn’t trying to conflate the two things. I was providing a source on where the “farms” came from, and clarified that they were meant to help “drug addicts” (not minimizing your experience- just reinforcing that the wording is already not great from a lens of treating maladaptive substance use, in addition to being completely inappropriate for people who take prescribed medications.)

          I neither agreed not disagreed, though I do find it problematic to be enrolling people who are neurodivergent into any kind of list for any reason without their expressed consent and ability to withdraw that consent at any times. If the reason is purely investigation/research as you say, then I believe that it should be under the same rigor and ethics considerations as any other research.

          • locuester@lemmy.zip
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            1 day ago

            I believe that it should be under the same rigor and ethics considerations as any other research.

            It’s NIH doing it. I don’t think there’s any reason to think the standards would be any different.