It’s caused backlash among the chronic illness community.
While Dragon’s Den viewers were still buzzing over the addition of newest honorary dragon Gary Neville, social media was also discussing the devastating impact Thursday night’s show had on the disability community.
ME (myalgic encephalomyelitis) is a debilitating chronic illness which causes life-changing fatigue, muscle and joint pain, brain fog and headaches to name but a few symptoms.
When a young entrepreneur popped up on Dragon’s Den and claimed that a “personal healing journey” that included ear seeds had aided her recovery from ME within 12 months, most of us living with the condition rolled our eyes, as there’s famously no scientific cure for the condition.
Some in the audience were intrigued, however, and the “Are you watching Dragons’ Den?” messages started rolling in from friends and family.
What Giselle Boxer presented were needle-less acupuncture “ear seeds”. Based on traditional Chinese medicine, acupuncture seeds trigger pressure points – and, from personal experience, acupuncture has certainly helped me temporarily sleep better.
That Giselle is confident that the seeds helped her is wonderful, but also anecdotal. To present her experience as some sort of ‘cure’, with no science to back it up, is concerning for those of us with ME, who are often not taken seriously by medical professionals or the general public.
In the end, Giselle was made an offer by all six Dragons. Whether intentionally or not, Dragon’s Den has now left the door open to yet more ill-advised treatments.
ME is a complex disorder. A large proportion of us do not know what triggered the extreme fatigue that has led many of us to become wheelchair users and to become intolerant of light or noise, even of the touch of our loved ones.
Globally, funding into research is incredibly low despite ME, Chronic Fatigue Syndrome and similar condition Long Covid showing that sufferers have some of the lowest quality of life across all illnesses.
Despite this, some doctors in the UK are still suggesting dangerous treatments such as Graded Exercise Therapy, which has officially been taken out of the NICE guidelines due to it showing that it sets patients back further.
Many sufferers are sadly still faced with accusations that they are faking illness, being lazy or not trying hard enough.
If a tiny stick-on seed featured on Dragon’s Den can cure everything, why are we not whacking them all over our pressure points and skipping off to do a full day’s work followed by an ultra marathon?
Editorially, the BBC has made a grave decision in allowing a product to seem that, coupled with various wellness practises, it could somehow cure an illness, without scientific backing.
Would the BBC allow a show to go out which claimed jelly babies cured heart disease? Or taking up crochet would fix a broken leg?
What was shown on television for several minutes has collectively cost those of us with ME days and days worth of energy, filling in complaint forms and having unneeded conversations with people about the reality of living with our condition.
Dr Charles Shepard, Hon Medical Advisor for the ME Association said: "The way in which Dragons’ Den has been used to promote an unproven treatment for ME/CFS has, not surprisingly, caused a great deal of upset and concern in the ME patient community.
"People with ME/CFS are fed up with the way in which products like this are regularly being promoted when there is no sound evidence from proper placebo-controlled clinical trials to confirm that they are safe and effective.
“These sort of expensive commercial products and devices should not be promoted to very vulnerable sick people until they have been properly assessed for safety and efficacy in clinical trials – in exactly the same way that drug treatments are.”
In response to this story, a BBC spokesperson said: “Dragons’ Den features products from entrepreneurs and is not an endorsement of them. Dragons’ Den shows real businesses pitching to investors to lift the lid on what happens in the business world. This episode features an entrepreneur sharing their own, personal experience that led to a business creation.”
Dragons’ Den has showcased some incredible businesses designed to make disabled people’s lives easier: from all-terrain wheelchairs by AdaptAbility to adaptive clothing company Unhidden.
Getting disability aids onto the screens of millions of people is important to those of us who use them; visibility and societal acceptance are key ways to change things for the better.
However, with such a large audience comes responsibility for BBC Studios, makers of Dragons’ Den, and for the dragons themselves to responsibly question contestants on scientific evidence and data sources.
ME patients don’t have to prove their illness to anyone. But to present one person’s journey unchallenged has a tangible, damaging impact on others.
Well dragon’s den is about making money, and these snake oil scams make money
Yes, we all understand why this is happening, it doesn’t make it ok though (not just morally, but it’s also against the broadcasting rules that the BBC has to abide by, just like all other channels, despite their existence all being to make money)
I…sincerely thought dragons den was a fake parody show of shark tank that the trailer park boys made up…
I mean come on… Fucking dragons den?!
Well, dragon’s den did come first, both originally in Japan and then in the UK, before the US version changed the name, so if anything is a parody it’s them… (I’m no invested in this or defending anyone/thing, just fyi-ing)
Looks like it was originally The Tigers of Money in Japan. It’s parodies all the way down.
Yeah, who needs turtles all the day down. Parodies all the way down for the win.
That BBC statement was so enraging I had the momentary urge to downvote this post in order to downvote what I’d just read.
Yeah, I had similar feelings…
What Giselle Boxer presented were needle-less acupuncture “ear seeds”. Based on traditional Chinese medicine, acupuncture seeds trigger pressure points – and, from personal experience, acupuncture has certainly helped me temporarily sleep better.
Acupuncture ‘works’ through the placebo effect.
There were scientific studies confirming it does actually have limited benefits but of course it’s not the “cure all” it’s being sold as.
The studies confirmed the placebo effect, which is also how sugar pills and homeopathy ‘works’.
To add to this, the placebo effect is how we measure things don’t work.
If the action of effect is placebo, then the treatment is considered ineffective. The placebo effect comes about because people’s responses aren’t objective and can’t be relied upon.
In the UK it illegal to prescribe a placebo. It often happens, doctors recommend things like acupuncture and cough medicine, it gets people out the door and on to.the next patient.
So do most medical interventions.
Except no. That’s not how it works at all.
Medical interventions must be better than placebo, and by a measurable amount, or else those interventions are not granted regulatory approval.
If they are not better than placebo, then (in the US) they get sold over the counter as “herbal remedies” or “alternative medicine”.
Do you know what the alternative to medicine is? Not medicine.
I think what the previous poster meant is that any treatment adds the placebo effect to (hopefully) a real effect from the intervention. Ben Goldacre details this in his book Bad Science.
No, the words the other poster used were dismissing actual scientifically supported medical interventions as being the placebo effect.
I’d go to OFCOM (media regulator) and complain to the BBC directly.
There is no putting the genie back in the bottle but there will be safeguarding guidelines against this.
Not to downplay the issue but with the decline of traditional media I doubt a huge number of people will ever see this episode.
From the article:
What was shown on television for several minutes has collectively cost those of us with ME days and days worth of energy, filling in complaint forms and having unneeded conversations with people about the reality of living with our condition.
the point being - trust that those impacting are doing the best we can to complain, and join in in complaining to OFCOM and/or help spread the word instead of just telling us what we already know.
You might not mean it to be, but it is downplaying not only the seriousness of the issue (many more people than you think still watch these shows, and if anything, it is those who are more vulnerable to scams who are more likely to still be watching terrestrial tv, which makes this even more egregious), but also the actions already being taken by those it impacts (including publishing pieces like the one you’re dismissing to raise awareness in those who don’t think they are directly impacted).
