Never heard of childhood dementia before, and apparently many people were like me before watching the video, so I am spreading awareness.
This genuinely felt like a weird scam to me. I had no idea it existed, but apparently there’s a whole host of childhood conditions that can cause childhood dementia.
That’s very upsetting.
The donation link is above all of the social media (Facebook, Twitter/X, etc.) ones so the focus seems on bringing in money rather than raising awareness.
Nations used to have functioning government systems that would fund this stuff - not just in children but in adults too. But right-wing parties seem in control of everything lately, thus such children that provide less tangible benefits to society will get triaged in terms of available funding.
Still kinda sounds like a scam. This particular video I mean. Because I act the same way when I’m high af. Having known people who actually have dementia, this is not how they act.
No idea about this particular girl, but there’s plenty of authentic disorders that can cause childhood dementia:
- Batten Disease (Neuronal Ceroid Lipofuscinoses, NCL)
- Sanfilippo Syndrome (Mucopolysaccharidosis Type III, MPS III)
- Niemann-Pick Disease Type C, GM1 and GM2 Gangliosidosis (Tay-Sachs and Sandhoff Disease)
- Leukodystrophies (such as Metachromatic Leukodystrophy and Krabbe Disease)
- Mitochondrial Disorders (such as Leigh syndrome)
- Rett Syndrome
Watch video and watch follow up video and damn that is fucked. In the second video a child young as 2 got that shit. We need a cure yesterday
I have never heard of childhood dementia and a quick Google search seems to point only on this website and other sites with exact same wording.
The numbers they give seem impressively high for a disorder that is barely documented on the internet.
The symptoms are basically normal children behavior.
This looks like a scam design to scare parents into buying something.
It might look like this by accident but I would do a lot more research if I were to donate or take their advice.
Yeah, I did some research and it’s really weird. The majority of sites that talk about it are Australian and it’s barely, if at all acknowledged anywhere else in the world. I found some sites that seems legit:
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3943077/
https://www.adelaide.edu.au/newsroom/news/list/2023/09/18/devastating-causes-of-childhood-dementia-revealed
https://www.alzint.org/news-events/news/shining-a-light-on-childhood-dementia/
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10486052/
https://www.dzne.de/en/news/background/childhood-dementia/
https://rareportal.org.au/rare-disease/childhood-dementia-disorders/
https://rarediseases.org/organizations/childhood-dementia-initiative/
I think that maybe it wasn’t recognized before due to how rare and weird it is, like ptsd was, but I can’t say for sure if it’s not a scam.
